‘Parcours de Femme 2001’: a French opinion survey on overall disease and everyday life management in 1870 women presenting with gynecological or breast cancer and their caregivers
Identifieur interne : 000D73 ( France/Analysis ); précédent : 000D72; suivant : 000D74‘Parcours de Femme 2001’: a French opinion survey on overall disease and everyday life management in 1870 women presenting with gynecological or breast cancer and their caregivers
Auteurs : D. Serin ; J. M. Dilhuydy ; P. Romestaing ; N. Guiochet [Monaco] ; J. Gledhill ; P. Bret ; J. Savary ; A. Flinois [France]Source :
- Annals of Oncology [ 0923-7534 ] ; 2004-07.
English descriptors
- KwdEn :
Abstract
Purpose: The aim of the survey ‘Parcours de Femmes 2001’ was to evaluate the overall management and care of women with female cancers and to determine their needs. Methods: Women with breast or gynecological cancer who had either received at least 3 months of treatment or had completed treatment <1 year before the study were enrolled in this cross-sectional, observational study. Results: From February to November 2001, 2839 questionnaires were distributed; 1870 were returned (66% response rate), mainly by breast cancer patients (87%). While 92% of women reported having received information at diagnosis, 34% of relapsed patients complained of lack of information concerning their disease and treatment. Only 18% of patients were included in the treatment decision process and 66% of women obtained complementary information from the media, patients and care professionals. Fatigue was the most severe problem quoted (78% of cases) and was poorly managed by caregivers due to diagnostic and treatment difficulties. Problems relating to family and to affective and socio-professional life were poorly identified and remained largely unmanaged. Conclusions: Information given to female cancer patients must be improved in relapsed patients, particularly regarding the adverse effects of treatment. Psychosocial management requires a more holistic approach through new channels, together with the coordination of existing structures.
Url:
DOI: 10.1093/annonc/mdh265
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ISTEX:E667BF373A79D1C9C0B60F8BF58CA704DE5240A6Le document en format XML
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Methods: Women with breast or gynecological cancer who had either received at least 3 months of treatment or had completed treatment <1 year before the study were enrolled in this cross-sectional, observational study. Results: From February to November 2001, 2839 questionnaires were distributed; 1870 were returned (66% response rate), mainly by breast cancer patients (87%). While 92% of women reported having received information at diagnosis, 34% of relapsed patients complained of lack of information concerning their disease and treatment. Only 18% of patients were included in the treatment decision process and 66% of women obtained complementary information from the media, patients and care professionals. Fatigue was the most severe problem quoted (78% of cases) and was poorly managed by caregivers due to diagnostic and treatment difficulties. Problems relating to family and to affective and socio-professional life were poorly identified and remained largely unmanaged. 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